As you know I had an MRI a couple of weeks ago. The MRI itself is never really an issue for me, in all honesty I fall asleep most of the time in there! For me, the worst part of an MRI is waiting to hear from my neurologist about the results.
Well, today was that day! I got the call from my neurologist, as soon as I noticed the number on my phone I thought I would be sick!! I've known since the spring that something wasn't quite right and that my body was unhappy again. I'd like to think I was prepared for bad news, but clearly my nerves were not.
My neurologist explained that I have 2 new lesions in my brain. She was hopeful that with the location of them that they wouldn't cause too many issues for me. However after talking with her a bit more and figuring out a timeline for when the tremors in my arm and throat started, we believe that these new lesions are in fact the cause of this fun new symptom.
Hopefully since the lesions are no longer active the tremors will subside a bit, if not, I guess I will learn to live with them.
So, I guess technically I wasn't told anything that I hadn't already assumed. It's just never fun to hear that more of your brain has diminished.
After we were finished with the MRI report we discussed my DMT (disease modifying therapy). No matter what I knew that today would be the day to discuss a med switch due to government health plan policies. We discussed taking my off of Copaxone and putting me on the biosimilar, Glatect. Before I agreed to the switch though I had to let her know some of the issues I've been having with Copaxone. Issues include extreme joint pain lasting hours, burning in my skin that can't be soothed, large welts lasting days...... and the list goes on.
Because of these issues my neurologist believes that my body is not tolerating the drug anymore and it's time to switch. Switching DMTs scares me more than waiting for my MRI results, there are so many variables to consider,
The last time I had to consider what DMT to take was at my diagnosis, I chose the one I'm currently on because I believed I could handle the side effects of it the best. Some of my other options have some possible side effects that I'm not sure I could handle.....
So hear I sit, waiting for a call to discuss my options...
